Appointments are Sometimes the Worst

This morning we bought Jaylen to the doctor. There were no parking spaces so Terence has to let us out. Not to mention he can't help me much, he’s unable to put his prosthetic leg on due to some issues with the amputated leg.  Let's add that Jaylen has a new wheelchair that’s still hard for me to control. It's an electric wheelchair and I’m still learning.

After Terrence pulled off to find a parking spot, Jaylen gave me the hardest time. He resisted as I try to put him in the wheelchair. So I was in the parking lot for a few minutes fighting with him to get him to sit in the chair.

I constantly had to stop to pull him back up as we walked down the hallway to his appointment. Which as I stated before we were all ready late for.

Once we were inside the doctor's office his mood got even worse. People watched us without asking if we needed help. Not even the people that worked at the doctor's office ask if they could help.

It took everything in me, not to just breakdown crying because everyone was looking without offering to help. Maybe when they saw my son fighting me they thought he could possibly hurt them. I guess it would’ve made me feel better if someone would’ve just offered to assist me.

People don’t realize how hard it is, even if I do make it look easy. People look at Jaylen's wheelchair and immediately think he’s not able to do a lot of things. If only they truly knew the things he’s capable of.

 

Author: Marissa Sweat-Evans

Marissa Sweat – Evans was born in Charleston, South Carolina on September 27th, 1986 to James Sweat and the late Tracy Graham. Marissa is the youngest girl of 6, 2 sisters and 3 brothers. Marissa grew up in Holly Hill, South Carolina where she attended and graduated from Holly Hill Roberts High in the year 2004. Marissa furthered her education by attending Midlands Technical College where she graduated with a certificate in Early Childhood Education in 2017 and an associate degree in Early Childhood Education in 2018. Marissa has been married for 6 years to her husband Terence Evans. Together they have 3 children (Jaylen, Jada and Ny’Asia Evans), Their oldest and only boy, Jaylen has cerebral palsy, epilepsy, and autism. Marissa enjoys volunteering in the special needs community in honor of her son Jaylen. When she had Jaylen, she was clueless about what it took to raise a child with special needs. With the help of her mother, they began looking for resources to assist in the rearing of Jaylen. While on this journey Marissa has met some incredible moms, who share similar stories which empowered her desire to provide inclusive opportunities for the special needs community. Marissa gets a high seeing the smiles on the faces of those who are voiceless. It’s not about recognition for her, it’s about creating opportunities for the voiceless.

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